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August 22, 2026The Cleft Palate-Craniofacial Journal

Psychosocial Adjustment Among Chinese Youth with Cleft Lip and/or Palate: A Qualitative Study

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Authors

WZWenjie ZhaoWeifang Medical UniversityPZPeiyu ZhaoWuhan UniversityZLZongshuai LiuWuhan University

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Overview

Qualitative study reveals key developmental, familial, and clinical drivers of psychosocial adjustment in youth with cleft lip and palate, highlighting the need for age-sensitive care.

Key Points

  • To examine the psychological, family-related, interpersonal, and treatment-related experiences of individuals with cleft lip and/or palate across developmental stages.
  • Conducted a qualitative investigation using semi-structured interviews analyzed via thematic analysis with an iterative coding process.
  • Recruited N=172 participants aged 8–26 years diagnosed with cleft lip and/or palate via consecutive sampling in a clinical care setting.
  • Identified four core interrelated themes: mental functioning and body image, family dynamics, interpersonal functioning, and treatment experiences.
  • Most participants reported persistent self-consciousness, social withdrawal, reduced self-worth, and peer teasing, while n=11 noted emotionally distressing delayed diagnosis disclosure by parents.
  • Treatment-related distress was driven primarily by clinical uncertainty and perceived dismissiveness during clinician-patient communication rather than surgical or medical procedures themselves.

Cite This Study

Zhao et al. (2026) studied this question.

synapsesocial.com/papers/6a895effca7ade938187d49dhttps://doi.org/10.1177/10556656261475739
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