What does this research mean for the field?

Parents of young children with congenital heart disease experience immense physical, emotional, and financial caregiving burdens, but utilize spirituality and faith as vital sources of resilience. Novelty: ClaimNovelty.INCREMENTAL. Consensus alignment: ConsensusAlignment.NEUTRAL.

What question did this study set out to answer?

To explore the lived experiences, emotional responses, and caregiving challenges of parents of children under five years old diagnosed with congenital heart disease.

August 29, 2026Nursing OpenOpen Access

The Lived Experiences of Parents of Children Diagnosed With Congenital Heart Disease: Challenges, Emotional Responses, and Sources of Strength

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Authors

AKAbedallah KasemJordan University of Science and Technology NRNadin M. Abdel RazeqUniversity of Jordan JAJumana Al‐OmariAl-Zaytoonah University of Jordan

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Implication

Qualitative study uncovers heavy emotional, physical, and financial strain alongside faith-based coping in parents of children with congenital heart disease, indicating the need for holistic support.

Key Points

To explore the lived experiences, emotional responses, and caregiving challenges of parents of children under five years old diagnosed with congenital heart disease.
Purposively recruited 10 parents (six mothers and four fathers) of children younger than 5 years diagnosed with congenital heart disease from two public hospitals in Jordan.
Conducted semi-structured interviews face-to-face or via smartphone video call and analysed qualitative data using Braun and Clarke's six-step thematic analysis under COREQ guidelines.
Identified an immense caregiving burden characterised by physical exhaustion, nutritional and feeding difficulties, severe financial strain, and obstacles navigating hospital care.
Documented profound emotional and psychosocial struggles, including persistent distress, hyper-protective caregiving behaviours, disrupted family dynamics, and societal stigma.
Identified spirituality, trust in divine will, and faith-inspired charitable acts as central mechanisms fostering resilience and coping amidst adversity.

Cite This Study

Kasem et al. (2026) studied this question.

synapsesocial.com/papers/6a92991a8e5d7d1fc0c10dde https://doi.org/10.1002/nop2.70765

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Implication

Qualitative study uncovers heavy emotional, physical, and financial strain alongside faith-based coping in parents of children with congenital heart disease, indicating the need for holistic support.

The Lived Experiences of Parents of Children Diagnosed With Congenital Heart Disease: Challenges, Emotional Responses, and Sources of Strength

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Key Points

Cite This Study

The Lived Experiences of Parents of Children Diagnosed With Congenital Heart Disease: Challenges, Emotional Responses, and Sources of Strength

Discussion

Member takes

Implication

Key Points

Cite This Study

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