Key result
The Swiss ORCHID registry was successfully established to prospectively collect clinical and neurodevelopmental data on neonates with severe congenital heart disease, enrolling 161 patients between 2019 and 2021.
Why the study?
With improved survival in congenital heart disease, a nationwide registry was needed to monitor neurodevelopment until school age and identify risk and protective factors in children undergoing early heart surgery.
Observational (n=161)
Yes
The ORCHID registry is a Swiss nationwide prospective registry designed to monitor long-term neurodevelopmental outcomes in children undergoing early surgery for severe congenital heart disease.
May warrant systematic neurodevelopmental surveillance after infant CHD surgery; leaves open modifiable risk factor identification.
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Natterer et al. (2022) conducted an observational in Severe congenital heart disease (n=161). Severe congenital heart disease requiring early intervention was evaluated on Standardised neurodevelopmental assessments at 9 to 12 months, 18 to 24 months and 5.5 to 6 years. The Swiss ORCHID registry was successfully established to prospectively collect clinical and neurodevelopmental data on neonates with severe congenital heart disease, enrolling 161 patients between 2019 and 2021.
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