Key result
Patient-reported outcome measures provided useful insight into the patient perspective for holistic management across 6 studies including 5,734 patients undergoing congenital heart surgery.
Why the study?
Evaluation of CHD surgery outcomes has shifted from mortality and morbidity to self-reported outcomes, prompting a review of patient-reported outcome measures in children and adults after CHD surgery.
Are patient-reported outcome measures useful for evaluating outcomes in patients who underwent surgery for congenital heart disease?
Systematic Review (n=5,734)
Are patient-reported outcome measures useful for evaluating outcomes in patients who underwent surgery for congenital heart disease?
Patient-reported outcome measures are useful indicators for evaluating outcomes from the patient's perspective following congenital heart surgery, supporting a shift toward holistic, patient-centered management.
Supports integration of patient-reported outcome measures into congenital cardiac surgery follow-up; extends evidence for holistic, patient-centered management.
BACKGROUND: Patient-reported outcome measures are commonly used to evaluate the effectiveness of treatments. CHD remains the most common congenital malformation. There has been a gradual shift in evaluating the outcome of surgery for CHD from mortality to morbidity and now to self-reported outcomes. AIMS: We aimed to review studies assessing patient-reported outcome measures as a useful marker of outcome for patients, both children and adults, who underwent surgery for CHD. METHODS: A systematic database search was conducted of original articles that explored the application of patient-reported outcome measures in the CHD surgical setting in PubMed and SCOPUS from inception to February 2022. RESULTS: Our search yielded 1511 papers, of which six studies were included in this review after screening abstract and full-text, with a total sample size of 5734 patients. The main areas of discussion were the utility of patient-reported outcome measures, determinants of patient-reported outcome measures, and the need for a congenital cardiac surgery-specific patient-reported outcome measure for paediatric patients and their parents/guardians and adult patients. CONCLUSION: This systematic review reports the use of patient-reported outcome measures to be a useful indicator to gain insight into the patients' perspective to provide holistic and patient-centred management. However, further studies are required to assess the utility of patient-reported outcome measures in a congenital cardiac surgical setting.
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Francis et al. (2023) conducted a systematic review in Congenital heart disease requiring surgery (n=5,734). Patient-reported outcome measures was evaluated on Utility and determinants of patient-reported outcome measures. Patient-reported outcome measures provided useful insight into the patient perspective for holistic management across 6 studies including 5,734 patients undergoing congenital heart surgery.
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