Medical and Day-to-Day Burden on Families of Children with Hypoplastic Left Heart Syndrome Who Have Undergone Single Ventricle Surgical Palliation over a Decade

Children with hypoplastic left heart syndrome (HLHS) and their families face unique medical and non-medical challenges throughout their entire life. The objective of this research is to describe day-to-day burden on families and medical outcomes of children with (HLHS) who underwent surgical palliation.