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July 15, 2019The Cleft Palate-Craniofacial JournalOpen Access

The Contribution of a Charitable Organization to Regional Cleft Lip and Palate Services in England and Scotland

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Authors

NSNicola Marie StockEGElla GuestKSKate Stoneman

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Overview

Pragmatic mixed-methods study reports enhanced coping and local support networks in individuals with cleft lip and palate, highlighting the value of charitable partnerships in clinical care.

Key Points

  • To evaluate the seven-year impact of a regional support service implemented by a charitable organization for individuals with cleft lip and/or palate, their caregivers, and clinical teams.
  • Conducted a pragmatic, mixed-methods evaluation commissioned by the Centre for Appearance Research across regional services over a seven-year period in England and Scotland.
  • Gathered feedback from charity volunteers, individuals with cleft lip and/or palate, caregivers, and clinicians using event questionnaires, focus groups, and an online survey.
  • A majority of participants reported gaining access to local support networks, feeling better equipped to cope with condition-related challenges, and experiencing increased self-confidence.
  • Qualitative analysis demonstrated broader institutional benefits for regional cleft clinical teams collaborating directly with the charitable service.

Cite This Study

Stock et al. (2019) studied this question.

synapsesocial.com/papers/6aa46fd9ac77d5296f2bc309https://doi.org/10.1177/1055665619862727
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  4. 4Changing Faces, Changing Futures: The CLAPP Humanitarian Cleft Program Model for Cleft Care in Low-Resource Settings2025 · 2 citations
  5. 5Development and Preliminary Outcomes of a Parent-Led Intervention for Malaysian School-Age Children With Cleft Lip and/or Palate2026