The Chronicity Impact and Coping Instrument: Parent Questionnaire (CICI:PQ) is an instrument to measure (1) parent perceptions of the impact of chronic childhood disorders on the family and (2) how parents cope with the difficulties they encounter as a result of their child's condition. It is intended for use by clinicians in various settings and by researchers interested in a variety of chronic childhood illnesses.
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Debra P. Hymovich (1983) studied this question.