Why the study?
There was a need to establish clear, comprehensive, and equitable national standards to guide healthcare services for childhood-onset heart disease in Australia.
The CoHD Standards provide a framework for comprehensive, inclusive, and equitable care for patients with childhood-onset heart disease in Australia.
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Establishes national benchmarks for CoHD care in Australia; extends international standards locally and guides implementation research.
These first Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards) have been developed to inform the healthcare requirements for CoHD services and enable all Australian patients, families and carers impacted by CoHD (paediatric CoHD and adult congenital heart disease [ACHD]) to live their best and healthiest lives. The CoHD Standards are designed to provide the clarity and certainty required for healthcare services to deliver excellent, comprehensive, inclusive, and equitable CoHD care across Australia for patients, families and carers, and offer an iterative roadmap to the future of these services. The CoHD Standards provide a framework for excellent CoHD care, encompassing key requirements and expectations for whole-of-life, holistic and connected healthcare service delivery. The CoHD Standards should be implemented in health services in conjunction with the National Safety and Quality Health Service Standards developed by the Australian Commission on Safety and Quality in Health Care. All healthcare services should comply with the CoHD Standards, as well as working to their organisation's or jurisdiction's agreed clinical governance framework, to guide the implementation of structures and processes that support safe care.
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Sholler et al. (2024) studied Childhood-onset Heart Disease (CoHD). Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards) was evaluated. The first Australian National Standards of Care for Childhood-onset Heart Disease were developed to provide a framework for excellent, comprehensive, and equitable care across Australia.
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