Key result
FaRSH demonstrates the feasibility of establishing a hospital-based systolic heart failure registry.
Why the study?
Systolic heart failure is a highly prevalent disease with serious health system costs and lacks a surveillance system in Iran that considers both efficacy and safety measures.
Observational (n=100)
No
The Fasa Registry for Systolic Heart Failure (FaRSH) is a feasible hospital-based registry in Iran that aims to evaluate management patterns and outcomes in patients with systolic heart failure.
Answers are grounded in this paper and cite their sources.
Should not yet alter systolic HF management; leaves open registry value for regional outcome research.
Background: Systolic heart failure (SHF), as a highly prevalent disease with serious costs to the health system, is becoming one of the major challenges for health policy makers. Every attempt to define treatment patterns and patient outcomes is welcome in that the definition of cost-effectiveness is of paramount importance for this chronic condition. A good surveillance system, which is missing in Iran, must thus consider both efficacy and safety measures. Fasa Registry for Systolic Heart failure (FaRSH) is the first hospital-based registry for SHF in Iran targeted to provide a meticulous description of patients' characteristics, to explore the management patterns of these patients, to discover the degree of adherence to the practice guidelines, and to investigate the determinants of poor in-hospital and later outcomes. Methods: A diagnosis of SHF was made upon the accepted criteria by the attending cardiologists, and cases were further categorized to de-novo and chronic SHF. Two registrar nurses gathered data on demographics, place of residence and ethnicity, past medical history, risk factors, and the clinical course. Management patterns in the pre-hospital setting, during the hospital stay and at the discharge time were recorded. Routine laboratory results and cardiac biomarkers were registered. Results: Pilot phase included the first 100 patients, the demographic, clinical and therapeutic constitutes of whom are presented in this article. Rate of re-hospitalization and other follow up measures are meticulously compiled and discussed. Discussion: Obtained data on the characteristics of patients suffering from SHF revealed the major determinants of inadequate therapies and contributors of poor outcome. Completeness of data was guaranteed upon involvement of multiple checkpoints, and data quality was secured by means of automatic validation processes in addition to weakly physicians' roundups. Conclusion: Execution of FaRSH in the form presented, is feasible and it will build up a comprehensive hospital-based registry for SHF in the region.
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Bahramali et al. (2017) conducted an observational in Systolic heart failure (n=100). Systolic heart failure registry (FaRSH) was evaluated on Feasibility of the registry. The execution of the Fasa Registry for Systolic Heart failure (FaRSH) is feasible and will build a comprehensive hospital-based registry for systolic heart failure in the region.
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