SP1.11 Listening to what matters: Patient and carer perceptions of major trauma outcomes

Aims Measuring outcomes following major trauma (MT) identifies optimal treatment modalities, evaluates trauma systems, benchmarks services and tracks recovery/outcomes. In the UK, patient reported outcome measures (PROMs) were collected by the Trauma Audit Research Network at discharge and 6 months. This focus group explored patient and carer perceptions of the PROMs and outcomes they considered important. Methods 19 MT patients and carers convened in May 2024. A presentation provided background and purpose to facilitate discussion. Participants were in three groups with a facilitator and scribe. Conversations were transcribed and thematic analysis performed. Results One participant had previously seen the PROM. Participants felt it was not clear in its objective. Several participants felt completing PROMs at 6 months would be a negative reflective experience. Others felt it was too soon in their recovery. Participants emphasised that MT varies significantly, and outcome measurement should be simple. Outcomes considered important: follow up and gaps in care, functional recovery, psychosocial recovery, pain and complications. Some participants considered injuries to all body parts should be measured, with the option to skip those not applicable. Others considered only generic measures should be included. Participants felt patients and carers should be at the forefront of outcome measurement development, ensuring underserved communities were adequately represented. Participants considered feedback on results of outcome measurement, through direct contact or social media, important. Conclusion The current PROM doesn't include all outcomes considered important by patients/carers. Development of a Core Outcome Set with patients, carers and key stakeholders is needed.