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May 1, 2024BMJOpen Access

1304 CARRA-PReS consensus recommendations for patient reported outcome measures in childhood-onset systemic lupus erythematosus registries

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Authors

JCJC CooperUniversity of Colorado DenverSESmith EmNational Estuarine Research Reserve AssociationLLLB LewandowskiNational Institutes of Health

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Cite This Study

Cooper et al. (2024) studied this question.

synapsesocial.com/papers/68e6c94ab6db6435876480ffhttps://doi.org/10.1136/lupus-2023-lupus21century.92
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Patient-reported outcome measures for systemic lupus erythematosus: an expert Delphi consensus to guide implementation in routine care2024 · 4 citations
  2. 2Implementing patient-centered PROMs in sickle cell disease care: A european consensus approach2025
  3. 3P149 A systematic review of patient reported outcome measures for lupus-specific health-related quality-of-life following COSMIN guidelines2026
  4. 4Responsiveness of Patient-Reported Outcomes by Disease Trajectory in Systemic Lupus Erythematosus2026
  5. 51305 Implementing a treat to target strategy for lupus in the pediatric rheumatology clinic: baseline implementation assessment2024