What question did this study set out to answer?

To analyze the incorporation and reporting of patient reported outcomes (PROs) in Australasian Leukaemia and Lymphoma Group (ALLG) trials.

December 8, 2025BloodOpen Access

Patient reported outcome design, conduct and reporting in australasian leukaemia & lymphoma group (ALLG) cooperative group trials

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Authors

JPJodie PalmerLa Trobe University EHEliza A. HawkesCancer Council Victoria NDNicole Wong DooThe University of Sydney

Discussion

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Implication

Analysis shows patient reported outcomes improve reporting in trials for Hodgkin lymphoma and chronic myeloid leukaemia, suggesting adherence to guidance.

Key Points

To analyze the incorporation and reporting of patient reported outcomes (PROs) in Australasian Leukaemia and Lymphoma Group (ALLG) trials.
Analyzed data from ALLG clinical trials protocols and publications from 2007-2025.
Assessed completeness of PRO reporting using the CONSORT-PRO checklist.
Collected data on PROs measures and timepoints from clinical trials.
85% of trials included at least one patient reported outcome measure (PROM).
Most common PROMs included EORTC-QLQ-C30 and EQ-5D-3L.
The reporting rate of PRO results in publications was consistent with published industry data.

Cite This Study

Palmer et al. (2025) studied this question.

synapsesocial.com/papers/69362f3a4fa91c937236d3c7 https://doi.org/10.1182/blood-2025-4631

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Implication

Analysis shows patient reported outcomes improve reporting in trials for Hodgkin lymphoma and chronic myeloid leukaemia, suggesting adherence to guidance.

Patient reported outcome design, conduct and reporting in australasian leukaemia & lymphoma group (ALLG) cooperative group trials

Discussion

Member takes

Implication

Key Points

Cite This Study

Patient reported outcome design, conduct and reporting in australasian leukaemia & lymphoma group (ALLG) cooperative group trials

Discussion

Member takes

Implication

Key Points

Cite This Study

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