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December 8, 2025BloodOpen Access

Tailoring pediatric to adult care transition from high to low-resource settings: A user-centered design approach

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Authors

JBJosefina Aparecida Pellegrini BragaNFNicholas R. Faris

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Overview

User-centered design method improves healthcare transition in adolescents with sickle cell disease in Brazil, emphasizing cultural relevance.

Key Points

  • To adapt the GotTransition framework for Brazilian adolescents and young adults with sickle cell disease through user-centered design.
  • Employed a user-centered design methodology involving patients, families, and clinicians.
  • Conducted comprehensive needs assessments using mixed-methods including surveys and semi-structured interviews.
  • Collaboratively reviewed and modified the GotTransition framework to suit Brazilian contexts.
  • Identified a strong, connected sickle cell disease community and enthusiastic providers but few formal transition activities.
  • Developed the BRASIL toolkit with culturally relevant modifications for effective healthcare transition.
  • Toolkit content outlines key transition activities and responsibilities, integrating locally appropriate assessment tools.

Cite This Study

Braga et al. (2025) studied this question.

synapsesocial.com/papers/69362f444fa91c937236d57fhttps://doi.org/10.1182/blood-2025-2589
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1IMPLEMENTATION OF A PEDIATRIC-TO-ADULT CARE TRANSITION PROGRAM FOR SICKLE CELL DISEASE IN BRAZIL: A CONTEXTUAL EVALUATION2026
  2. 2Healthcare transition readiness for sickle cell disease: A high- and low- income comparative analysis2025
  3. 3228 Investigating the Transitionary Process from Pediatric to Adult Care and Improving Transitional Readiness for Youth with Sickle Cell Disease (SCD) through Co-Designing an Intervention2024
  4. 4Mechanism-informed transition from pediatric to adult care in sickle cell disease: a case study2026
  5. 5Psychometric evaluation of the self-management skills checklist across Brazil and the United States: Toward global measurement of transition readiness in sickle cell disease2025