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May 10, 2026SLEEP

0728 Impact of Narcolepsy Type 1 on Quality of Life, Employment, and Socioeconomic Burden: Results from a US Cross-Sectional Survey

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Authors

LJLinus JönssonKarolinska InstitutetAMAnne MorseGeisinger Medical CenterTLTara LavelleTufts University

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Implication

Cross-sectional survey shows narcolepsy type 1 reduces quality of life and employment opportunities in the US, indicating significant socioeconomic impacts.

Key Points

  • This study aims to assess how narcolepsy type 1 affects quality of life, employment, and socioeconomic factors in the US population.
  • Cross-sectional online survey of 247 narcolepsy type 1 participants conducted in the US.
  • Participants reported demographics, symptoms, and completed the Epworth Sleepiness Scale and EQ-5D.
  • Data were analyzed to evaluate the impact of narcolepsy type 1 on various life domains.
  • Median Epworth Sleepiness Scale score was 16, indicating severe excessive daytime sleepiness.
  • 55.3% of participants were employed, with 81.5% experiencing work disruption due to NT1 symptoms.
  • 57.0% required caregiver assistance, highlighting the significant socioeconomic burden of the condition.

Cite This Study

Jönsson et al. (2026) studied this question.

synapsesocial.com/papers/6a0020eac8f74e3340f9bc53https://doi.org/10.1093/sleep/zsag091.0727
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 10727 Holistic Symptom Burden Among Individuals with Narcolepsy Type 1 in the United States2026
  2. 20673 The Burden of Living with Narcolepsy : Patient Perspectives from In-Depth Qualitative Interviews2024 · 3 citations
  3. 30690 A Conceptual Disease Model of the Symptoms and Impacts of Narcolepsy Type 2 from the Patient Perspective2026
  4. 40761 Waking Up to Modern Decision-Making: Integrating Patient Perspectives into Narcolepsy Management2026
  5. 50689 A Conceptual Disease Model of the Symptoms and Impacts of Narcolepsy Type 1 from the Patient Perspective2026