What question did this study set out to answer?

To identify and understand the bothersome symptoms and impacts of narcolepsy type 2 from patients' perspectives.

May 10, 2026SLEEP

0690 A Conceptual Disease Model of the Symptoms and Impacts of Narcolepsy Type 2 from the Patient Perspective

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Qualitative study reveals symptoms and impacts of narcolepsy type 2, highlighting significant patient experiences.

To identify and understand the bothersome symptoms and impacts of narcolepsy type 2 from patients' perspectives.
Qualitative concept-elicitation interviews with 20 adults diagnosed with narcolepsy type 2.
Participants rated bothered symptoms and impacts on a scale of 0-10.
Concept frequency and bothersomeness ratings were analyzed to develop a conceptual disease model.
Participants identified 30 symptoms and 38 impacts, with 17 symptoms and 13 impacts deemed salient.
Chronic daytime sleepiness was reported by 100% of participants with a mean bothersomeness rating of 8.6.
Daily functioning impacts included significant difficulties in work, social activities, and relationships.

Casstevens et al. (2026) studied this question.

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