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March 7, 2026Frontiers in NeurologyOpen Access

Patient-reported experiences of cognitive difficulties and their impact on daily life in narcolepsy type 1

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Authors

KMKiran MaskiKPKathryn PfeifferMBM Brod

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Overview

Qualitative interviews unveil cognitive challenges in narcolepsy type 1, suggesting a need for further assessment and treatment.

Key Points

  • The aim is to explore cognitive difficulties in adults with narcolepsy type 1 and their effects on daily life.
  • Conducted in-depth qualitative interviews with adults diagnosed with narcolepsy type 1 in the US.
  • Participants were recruited through advocacy organizations, a market research firm, and referrals.
  • Analysis used an adapted grounded theory approach to identify themes related to cognitive issues.
  • Most participants reported cognitive difficulties, primarily in remembering and sustaining attention.
  • Difficulties were characterized as moderate to severe and occurred daily.
  • Findings led to a conceptual model illustrating the broad impact of cognitive difficulties on functioning and well-being.

Cite This Study

Maski et al. (2026) studied this question.

synapsesocial.com/papers/69abc0de5af8044f7a4e9868https://doi.org/10.3389/fneur.2026.1760952
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Also Consider

Synapse has enriched 4 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Impaired cognition in narcolepsy: clinical and neurobiological perspectives2024 · 21 citations
  2. 2The Burden of Narcolepsy in Adults: A Population Sampling Study Using Personal Media2023 · 5 citations
  3. 3Neuropsychological Alterations in Narcolepsy with Cataplexy and the Expression of Cognitive Deficits2019 · 12 citations
  4. 4Narcolepsy: Beyond the Classic Pentad2025 · 14 citations