Ambiguous loss in family caregivers of patients in a permanent vegetative state: A reflexive thematic analysis

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Key Points

This analysis aims to explore how family caregivers experience and find meaning in ambiguous loss while caring for individuals in a permanent vegetative state.
Phenomenologically informed approach with semistructured interviews conducted with 13 family caregivers.
Data analyzed using reflexive thematic analysis in alignment with COREQ guidelines.
Four themes emerged: presence and absence, identity disruption and growth, emotional bonding practices, and the duality of waiting and saying goodbye.
Caregivers expressed the need for maintaining connections and challenging conventional medical views on the patient.

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Qualitative analysis reveals emotional challenges faced by caregivers in permanent vegetative state situations, suggesting new support strategies.

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Testoni et al. (2026) studied this question.

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