13th Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative

Q: What is the clinical evidence from this study?

Study design: Cohort. Population: Prenatally diagnosed congenital heart disease (n=210). Intervention: Delivery risk classification system vs. Pre-intervention standard care. Primary outcome: Delivery room maternal-infant bonding (maternal holding or skin-to-skin care) (p=0.056).

Q: What does this research mean for the field?

Implementation of a delivery risk classification system increases the rate of delivery room maternal-infant bonding from 34% to 55% in newborns with prenatally diagnosed congenital heart disease. Novelty: ClaimNovelty.INCREMENTAL. Consensus alignment: ConsensusAlignment.NEUTRAL.

doi:10.1017/s104795112611230x

June 18, 2026Cardiology in the YoungOpen Access

13th Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative

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Key Points

Resolve discrepancies between institutional clinic diagnostic options and the centralized Cardiac Neurodevelopmental Outcome Collaborative (CNOC) data dictionary to ensure reliable multi-site data entry.
Developed a dynamic standardized diagnostic classification spreadsheet and established explicit classification rules to map institutional diagnoses into CNOC Registry multiple-choice fields.
Categorized diagnostic ambiguities across clinical entries and documented diagnoses deemed inappropriate for CNOC Registry entry.
The standardized chart established classification for 110 diagnoses, resolving ambiguous categories by specifying nine diagnoses under 'language disorder' and four under 'speech delay'.
Implementation of the standardized tool achieved uniform data capture for identical patient diagnoses across personnel with varying levels of clinical expertise.

Study Design

Type

Cohort (n=210)

Multicenter

No

Structured PICO

P

Population

210 newborns with prenatally diagnosed congenital heart disease evaluated in a pre- and post-intervention cohort to assess delivery room maternal-infant bonding.

I

Intervention

Implementation of quality improvement initiatives including integrated psychology services, standardized EMR diagnosis tracking, safe handling protocols, chylous diet education, EMR-based risk stratification, delivery room maternal-infant bonding, and education liaison referrals.

C

Comparator

Pre-intervention baseline practices or standard care.

O

Outcome

Process measures including protocol adherence, referral rates, EMR report accuracy, and patient/family satisfaction.

Main Result

Absolute Event Rate: 55% vs 34%

p-value: p=0.056

Limitations

Retrospective baseline data collection
Single-center study
Small sample sizes in pilot phases
Single-center implementations for individual projects
Reliance on retrospective data for some baselines
Need for longer-term data collection to quantify impact

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Implication

Quality improvement initiatives across pediatric cardiology centers demonstrate feasibility and effectiveness in enhancing neurodevelopmental care, psychosocial support, and standardized data tracking for patients with congenital heart disease.

Abstract

Introduction and Objectives: The Cardiac Neurodevelopmental Outcome Collaborative (CNOC) established a centralized clinical registry to standardize data collection across member institutions.During neurodevelopmental (ND) follow-up clinic visits, our institution identified a mismatch between the diagnoses listed in the CNOC data dictionary and the options available in the https://doi.org/10.

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Cite This Study

A 2026 study conducted a cohort in Prenatally diagnosed congenital heart disease (n=210). Delivery risk classification system vs. Pre-intervention standard care was evaluated on Delivery room maternal-infant bonding (maternal holding or skin-to-skin care) (p=0.056).

synapsesocial.com/papers/6aa9016aeed42882c1fc17f2 https://doi.org/10.1017/s104795112611230x

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13th Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative

Key Points

Study Design

Structured PICO

Main Result

Limitations

Ask about this paper

Implication

Abstract

Discussion

Cite This Study

13th Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative

Key Points

Study Design

Structured PICO

Main Result

Limitations

Ask about this paper

Implication

Abstract

Discussion

Cite This Study

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