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August 10, 2026Journal of Empirical Research on Human Research Ethics

Misunderstanding and Overprotection: The Impact of Research Ethics Committees on Social Disability Studies in Chile

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Authors

PMPablo MarshallFHFlorencia HerreraNGNicole Gallegos

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Overview

Qualitative study identifies barriers in disability research ethics, indicating a need for flexible approaches.

Key Points

  • The study aims to understand the challenges researchers face in conducting disability research due to ethical committee requirements in Chile.
  • Qualitative approach with 18 semi-structured interviews with researchers
  • Focus on disabilities and ethical committee interactions
  • Analysis of barriers in applying ethical frameworks to social research
  • Identified a presumption of incapacity toward people with disabilities
  • Highlighted detrimental requirements imposed by ethics committees
  • Noted burnout within research teams and limitations in public policy evidence production

Cite This Study

Marshall et al. (2026) studied this question.

synapsesocial.com/papers/6a797d299c20a9bbd3184471https://doi.org/10.1177/15562646261476110
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Also Consider

Synapse has enriched 5 closely related papers on similar clinical questions. Consider them for comparative context:

  1. 1Ability expectations in collaborative research: Ethical reflections from three empirical studies with disability communities2025 · 2 citations
  2. 2Inclusion of people with disabilities in Chilean health policy: a policy analysis2024
  3. 3Including Research Subjects without Decision‐Making Capacity Only as Last Resort2026
  4. 4Rejecting the Label of “Vulnerable Subjects:” How Rethinking Ethical Guidelines for Research With Participants With Physical Disabilities Can Lead to Better Research2025
  5. 5Co-producing and participatory action research with young people who are autistic or have a learning disability: navigating institutional processes2026